Being a 17 year old in high school driving is big issue. I have known about the fact that I will not be able to drive due to my vision ever since I realized my eyes were an issue. So I have come to terms with it. It?s always a shock when I tell people that I will never be able to drive. My friends are a great help.
The main question I get from people when I tell them that I can?t drive, Is that where do you plan on living when you grow up? I love living in a small town but there is no public transportation. In a city there is a lot of transportation. At this point of my life I don?t know where I will live in the long term. It is a part of my decision of picking a college. I need to be able to get to entertainment by public transportation or by foot.
Friday, October 30, 2009
Monday, October 26, 2009
Surgeries
There are surgeries to fix ONH and Nystagmus. The procedure that fixes ONH is not legal here in the United States since it has to do with implementation of stem cells. Nystagmus surgery has to do with the null point and moving it to a more comfortable spo. The null point is where the eye relaxes when i am extremely tired and nervous. The eye stops moving and it results int to a head tilt that cna cause pan in the neck. The tilt counter acts where the null poin.
I have not gotten either surgery because of 2 reasons. The first is the ONH one is experimental and I don’t want to risk going blind. The 2nd is my null point is center bottom of my eye so it is in pretty good location in my eye. I use to have a head tilt that was straight back but as my nystagmus has gotten better my head tilt has gone away. I only have it when I am sitting still watching a play, movies, and or speaches.
I have not gotten either surgery because of 2 reasons. The first is the ONH one is experimental and I don’t want to risk going blind. The 2nd is my null point is center bottom of my eye so it is in pretty good location in my eye. I use to have a head tilt that was straight back but as my nystagmus has gotten better my head tilt has gone away. I only have it when I am sitting still watching a play, movies, and or speaches.
Tuesday, October 20, 2009
intro to ONH, Nystagmus, and myself
What is nystagmnus?
It is the uncontrollable movement of the eye. It can come at birth or because of a head trauma. It also can come with other visual problem.
What is ONH (Optic Nerve Hypoplasia)?
e optic nerve. It can result in bigger or more common blind spots. This may also come with other problems with the brain since the optic nerve is considered part of the brain and a part of the brain not growing means another part of the brain may of not grown fully. ONH can occur in one eye or both eyes. ONH can never get worse with in your life.
What is my story?
When I was at my 3 month old check up my pediatrician noticed my eyes moving funny. She sent me down to Boston to get testing fearing that there may be another problem hiding behind my nystagmus. I want down few time during the month of August. They did every type of testing imaginable. That's when the diagnosed me with ONH.
What is my vision?
When I tell people what my vision they always think that not bad which is 20/80 in my right eye and 20/60 in my left eye. The thing is since ONH means blind spots and nystagmus means you have trouble focussing on objects. So when you have less in your field of vision and cant focus you can imagine your what happens to your vision.
It is the uncontrollable movement of the eye. It can come at birth or because of a head trauma. It also can come with other visual problem.
What is ONH (Optic Nerve Hypoplasia)?
e optic nerve. It can result in bigger or more common blind spots. This may also come with other problems with the brain since the optic nerve is considered part of the brain and a part of the brain not growing means another part of the brain may of not grown fully. ONH can occur in one eye or both eyes. ONH can never get worse with in your life.
What is my story?
When I was at my 3 month old check up my pediatrician noticed my eyes moving funny. She sent me down to Boston to get testing fearing that there may be another problem hiding behind my nystagmus. I want down few time during the month of August. They did every type of testing imaginable. That's when the diagnosed me with ONH.
What is my vision?
When I tell people what my vision they always think that not bad which is 20/80 in my right eye and 20/60 in my left eye. The thing is since ONH means blind spots and nystagmus means you have trouble focussing on objects. So when you have less in your field of vision and cant focus you can imagine your what happens to your vision.
Subscribe to:
Posts (Atom)